The Perspective of the Pediatric Nurses toward Hemophilia in the Teaching Hospitals of Kirkuk city.

Abstract

Background: Hemophilia is a coagulation disorder arising from a genetic defect of the X chromosome; the defect can either be inherited or result from spontaneous gene mutation. In each type of hemophilia (A, B, and C), a critical coagulation protein is missing, causing individuals to bleed for long periods of time before clotting occurs.Objectives: 1-Assess the pediatric nurses' knowledge toward hemophilia in children.2-Find out the factores that affecting the knowledge of the sample.Subjects and methods A descriptive study was conducted on pediatric nurses who were dealing with the children who have hemophilia, carried out in Kirkuk Governorate / teaching hospitals starting from July / 2012 to september 2013 .Results Based on the results the researcher found that Most of study sample(78%) is males and (42%) at age between (31 and more ) years old. Most of the nurses (60%) graduated from nursing institute and around (38% ) of them have (1-5) years of experiences in their job as a nurse while (42%) of them have (1-5)years of experiences in blood diseases wards. The (68%) of the sample had no opportunity to be involved in training courses.Conclusion: the study indicated that the nurses have high rates of acceptable level in knowledge related to definition, type of hemophilia, the hereditary role in the transmission of hemophilia and treatment process of the disease the finding showed that the nurses have a unacceptable level in the knowledge, regarding the type of bleeding in hemophilia is internal and external, place of internal bleeding, the incidence of hemophilia in the families don't have history of the disease, types, other names of hemophilia B, the samples information about genetic roles for males and females to be incidence with hemophilia and the clotting process with the role of factors VIII , IX And these results have a bad effect on quality of care which provided for the pediatric patient. The result of the study found that most of the sample have uncertain information regarding the effect of hemophilia through bleeding on the life style of the carriers and the main complication to replacement therapy is the antibodies respectively.Recommendations Special training courses should be designed and constructed for nurses in relation to hemophilia. Nurse in hematological units must take their opportunity for continuing education. Increasing the number of professional nurses assigned to work in the pediatric and blood disease wards. Motivate the nurses to improve their knowledge and practices which help improve their performance with the patients. Providing scientific booklet, publication and journal about hemophilia in nursing educational program.